Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Monday, May 30, 2011

A favorite of mine I shot from my den this winter

My friend

Many have asked if the bird was real--yes it was. I guess he was trying out his wings and he couldn't make it back to the nest. My blanket was a soft place to land.

Sunday, May 29, 2011

Vancouver/Richmond ALS Walk


to everyone who came out in the chilly weather, to all those who donated and of course to the baby Starling who had a chat with me... and thank you to the niece who donated the prize I won. I too will remember your Aunt who passed away from ALS.

Thursday, May 26, 2011

Tuesday, May 24, 2011

I dream

Saturday, May 21, 2011

I reached my goal for the ALS walk on May 28th


Thank you to everyone who contributed. I raised $3,130. Yahoo!

Excellence in Engineering

I'm so proud of these UBC engineering students who won first prize for their eReader project. It was my privilege to meet four wonderful people who carefully listened to my needs and developed an eReader with a stand that I can use and enjoy. As an ALS patient who is gradually losing my ability to do "normal" activities, I welcome any device that enhances my lifestyle. Now I can read a book with the click of a mouse while relaxing in my power chair.

Sunday, May 15, 2011

Be your true self


Let the world know you as you are, not as you think you should be, because sooner or later, if you are posing, you will forget the pose, and then where are you? ~Fanny Brice

Monday, May 9, 2011

ALS Awareness Month


May is ALS Awareness Month in U.S. and June in Canada.
I grieve for my PALS living with ALS and the many I met online who brightened my life for a brief time and then were taken by this disease that shows no mercy.
Some are so young and have children who struggle to understand their impending loss. Some are elderly and have difficulty managing any electronic devices to compensate for loss of speech and mobility. Regardless of age, it is an ongoing struggle.
Please talk to others about Lou Gehrig's Disease /ALS and support the 40,000+ living with this disease in North America. Donate to your local chapter and/or walk in one of the many Walks for ALS.
We need your support. We need a cure.



Wednesday, May 4, 2011

A spring afternoon





Tuesday, May 3, 2011

Cavalia--a wonderful show.

I went to Cavalia--http://www.youtube.com/watch?v=np8WJ_2TbLA--watch here.
Fortunately for me, it was a treat from a good friend.
I would recommend it to anyone who appreciates the bond between trainer/rider and horse.
Here is a few photos from my adventure.



Monday, May 2, 2011

Nancy O'Dell and ALS


"ALS is a master of destruction and I can testify to that first hand. My beautiful mother had ALS and the courage and grace she showed throughout her whole journey with ALS was nothing less than extraordinary," said Nancy O'Dell, the Emmy Award-winning Entertainment Tonight co-anchor (see video). "So how do you go up against a master of destruction? Well the only way is to create a masterpiece of compassion and hope and that's what MDA's ALS Division is giving people with ALS."